CurePSP was successful in exceeding the matched grant, raising a total of $120,000 from its donors.
Light Of Day Foundation is dedicated to raising money and awareness for Parkinson’s disease and related neurodegenerative diseases such as progressive supranuclear palsy (PSP) and amyotrophic lateral sclerosis (ALS). In 2014, Light Of Day also gave CurePSP a matching donation of $80,000 to support its mission of providing services for patients, families and caregivers; education and awareness; and funding of research.
Since its inception in 2000 at its debut concert in Asbury Park, New Jersey, the Light Of Day Foundation has established itself as an internationally recognized tour with concerts in North America, Europe and Australia. Its first concert featured an appearance by American rock icon Bruce Springsteen and the tour has since featured Michael J. Fox, John Rzeznik of the Goo Goo Dolls, Ed Kowalczyk of Live, Lucinda Williams and many other prominent artists.
The concerts and the organization began as a party in November 1998 at the Downtown Cafe in Red Bank, NJ, to celebrate the 40th birthday of artist manager and music industry veteran Bob Benjamin. Benjamin had recently been diagnosed with Parkinson’s disease, a degenerative disorder of the central nervous system, and in lieu of gifts, asked that donations be made to the Parkinson’s Disease Foundation. More than $2,000 was raised that night. Spurred by the generosity and support, Benjamin reached out to friends including concert promoter Tony Pallagrosi, Jean Mikle (currently Light Of Day President), and musicians Joe D’Urso and Joe Grusheky and formed the Light of Day charity, taking its name from a Bruce Springsteen song.
“Light Of Day and CurePSP share a similar vision, that of care, consciousness and cure for devastating prime of life neurodegenerative diseases,” said Mr. Pallagrosi, who now serves as Executive Director of the Light Of Day Foundation. “Their dedication to the cause reflects that of our musicians and it was a pleasure to be able to help them through our concerts.”
David Kemp, President of CurePSP, added, “It is through the generosity of donors like the Light Of Day Foundation that we will eventually find treatment and cure for PSP and related prime of life brain disorders. We are excited about this partnership and grateful for their support.”
CurePSP is the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases – a spectrum of fatal brain disorders that often strike during a person’s most productive and rewarding years. Currently there is no treatment or cure for these diseases, which affect more than 150,000 people in the U.S. alone. Since it was founded in 1990, CurePSP has funded more than 170 research studies primarily in progressive supranuclear palsy (PSP) and the related disease corticobasal degeneration (CBD) and is the leading source of information and support for patients and their families, other caregivers, researchers, and doctors and allied healthcare professionals. CurePSP is based in New York City. Please visit www.curepsp.org for more information.
Lucas Metherall, 717-552-1393